Tifini’s Journey to Favor
My Fellow Families in Favor,
My name is Tifini Ferrell and I am honored to work with Nichelle Rudisell in creating a space for Families with special healthcare needs to feel honored, supported and connected.
My triplets, Forest, Laurel, and Sky were diagnosed with Autism at age 2. It was a bumpy ride. I did not have “natural supports” as I was encouraged to develop out of the NICU. There was no guide to services, no network of support. We struggled. I had to take extended leave from work because I had no childcare options for three little ones who did not fit the mold. I barely slept. We lost the car. We lost the house. Laurel escaped in the early hours of morning, barefoot in the rain, and DSS got involved.
Then I found Joy with Care Coordination for Children. She was my saving grace. She listened. She had me make a list of everything I needed and helped me find it. She helped me find providers and actually went with me to appointments. She helped me find and apply for personal care services and respite. She helped me apply for SSI. She did not judge- only offered options and let me design what actually worked for my family.
I could not believe all the things I did not know- all the struggles that could have been lessened or avoided completely if I had been connected with someone who knew the pathways of support and cared enough to hold my hand as I found my way.
More struggles were to come- the path to education is my next blog- but I began to build the connections that allowed me to see beyond the roadblocks to a path over, around and through.
I will let you know that the triplets are thriving now- and that my husband and I made it to a new normal. I want to be part of something that supports our community of special needs’ families’ unique and incredible journeys. I hope you will join us.
Yours in Favor,
Tifini